A collaboration between the Center for Health Information Partnerships (CHIP), the ASH Research Collaborative (ASH RC), and Prometheus Research has developed a “communicator” between two nation-wide health data standards. The tool allows secure flow of electronic medical records between users of Fast Healthcare Interoperability Resources (FHIR) and Patient-Centered Clinical Research Network’s (PCORnet’s) Common Data Model.
The first test of the “communicator” was done during a data transfer for the sickle cell disease ”Data Hub” under development by the ASH RC. This data repository will eventually allow the ASH RC to pool data from multiple national sources and make it available for query by institutions and investigators in search of new insights to address the burden of sickle cell disease.
The team is currently working to implement and test the “communicator” within the CAPriCORN. After that, it can be fine-tuned according to specific needs of other data registries and the intricacies of legal regulations.
‐ Abel Kho, MD, Principal Investigator, CAPriCORNBy connecting data from many institutions to create a more complete picture of what affects health, CAPriCORN enables ambitious research that matters to patients.
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